Thumbnail Image
Publication

A Canadian Perspective on a Child’s Consent to Research within a Context of Family-Centered Care

Sheahan, Linda
; 
Da Silva, Michael
; 
Czoli, Christine
Author(s)
Sheahan, Linda
Da Silva, Michael
Czoli, Christine
Contributor(s)
Keywords
Child
Consent
Pediatric
Research
Ethics
GE Subjects
Bioethics
Medical ethics
Health ethics
Community ethics
Social ethics
Family ethics
Collections
Research Ethics
Show all metadata
Files
Thumbnail Image
a-canadian-perspective.pdf
Adobe PDF, 1.71 MB
Research Projects
Organizational Units
Journal Issue
URI
http://hdl.handle.net/20.500.12424/224820
Online Access
Abstract
"Two major trends have developed in pediatric bioethics: family-centered care and increased recognition of emerging autonomy through legal and policy entrenched rights. The different foci of their corresponding health care delivery models (“family-centered” or “patient-/child-centered”) create the potential for conflict in the context of seeking consent to research or, as will be presented, the possibility of integration. Given the state of current bioethical principles and legal holdings, the pediatric patient should ultimately be the primary focus of ethical consideration and, at least in the context of dissenting to research, the child’s autonomous wishes should reign. However, in recognizing and supporting a child’s emerging autonomy, the family context should also be respected and taken into account. This discussion articulates the values underpinning these two important trends in pediatric health care delivery, and proposes a model for obtaining consent for pediatric research in the current context."
Note(s)
Topic
Type
Article
Date
2012
Identifier
ISBN
DOI
Copyright/License
Creative Commons Copyright (CC 2.5)
Embedded videos