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dc.contributor.authorBoronow, Katherine E.
dc.contributor.authorSusmann, Herbert P.
dc.contributor.authorGajos, Krzysztof Z.
dc.contributor.authorRudel, Ruthann A.
dc.contributor.authorArnold, Kenneth C.
dc.contributor.authorBrown, Phil
dc.contributor.authorMorello-Frosch, Rachel
dc.contributor.authorHavas, Laurie
dc.contributor.authorBrody, Julia Green
dc.date.accessioned2019-10-25T04:21:39Z
dc.date.available2019-10-25T04:21:39Z
dc.date.created2017-08-28 23:06
dc.date.issued2017-03-28
dc.identifieroai:dash.harvard.edu:1/31731871
dc.identifierBoronow, Katherine E., Herbert P. Susmann, Krzysztof Z. Gajos, Ruthann A. Rudel, Kenneth C. Arnold, Phil Brown, Rachel Morello-Frosch, Laurie Havas, and Julia Green Brody. 2017. “DERBI: A Digital Method to Help Researchers Offer “Right-to-Know” Personal Exposure Results.” Environmental Health Perspectives 125 (2): A27-A33. doi:10.1289/EHP702. http://dx.doi.org/10.1289/EHP702.
dc.identifierhttp://nrs.harvard.edu/urn-3:HUL.InstRepos:31731871
dc.identifier.urihttp://hdl.handle.net/20.500.12424/1306104
dc.description.abstractSummary: Researchers and clinicians in environmental health and medicine increasingly show respect for participants and patients by involving them in decision-making. In this context, the return of personal results to study participants is becoming ethical best practice, and many participants now expect to see their data. However, researchers often lack the time and expertise required for report-back, especially as studies measure greater numbers of analytes, including many without clear health guidelines. In this article, our goal is to demonstrate how a prototype digital method, the Digital Exposure Report-Back Interface (DERBI), can reduce practical barriers to high-quality report-back. DERBI uses decision rules to automate the production of personalized summaries of notable results and generates graphs of individual results with comparisons to the study group and benchmark populations. Reports discuss potential sources of chemical exposure, what is known and unknown about health effects, strategies for exposure reduction, and study-wide findings. Researcher tools promote discovery by drawing attention to patterns of high exposure and offer novel ways to increase participant engagement. DERBI reports have been field tested in two studies. Digital methods like DERBI reduce practical barriers to report-back thus enabling researchers to meet their ethical obligations and participants to get knowledge they can use to make informed choices.
dc.languageen_US
dc.language.isoeng
dc.publisherNational Institute of Environmental Health Sciences
dc.relation.ispartofdoi:10.1289/EHP702
dc.relation.ispartofhttp://www.ncbi.nlm.nih.gov/pmc/articles/PMC5289917/pdf/
dc.relation.ispartofEnvironmental Health Perspectives
dc.rightsopen
dc.titleDERBI: A Digital Method to Help Researchers Offer “Right-to-Know” Personal Exposure Results
dc.typeJournal Article
ge.collectioncodeOAIDATA
ge.dataimportlabelOAI metadata object
ge.identifier.legacyglobethics:11278376
ge.identifier.permalinkhttps://www.globethics.net/gel/11278376
ge.lastmodificationdate2017-08-28 23:06
ge.lastmodificationuseradmin@pointsoftware.ch (import)
ge.submissions0
ge.oai.exportid148650
ge.oai.repositoryid5611
ge.oai.setnameFAS Scholarly Articles
ge.oai.setspechdl_1_2
ge.oai.streamid2
ge.setnameGlobeEthicsLib
ge.setspecglobeethicslib
ge.linkhttp://nrs.harvard.edu/urn-3:HUL.InstRepos:31731871


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