THE LIMITS OF CONSENT: A SOCIO-ETHICAL APPROACH TO HUMAN SUBJECT RESEARCH IN MEDICINE
Keywords
ConsentMedicine
Research
Genetic Screening / Genetic Testing
Informed Consent or Human Experimentation
Social Control of Human Experimentation
Research on Special Populations
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http://hdl.handle.net/10822/548461Abstract
Contributors -- Introduction / Oonagh Corrigan, John McMillan, and Charles Weijer -- 1. Informed consent in medical research a procedure stretched beyond breaking point? / S??ren Holm and S??ren Madsen -- 2. Trust and exploitation in clinical research / Paul B. Miller and Charles Weijer -- 3. Consent and private liability in clinical research / Paul B. Miller and Josephine Johnston -- 4. The decision to decline to enrol in a clinical trial: a blind spot in the literature on decision-making for research participation / Clare Snowdon, Diana Elbourne, and Jo Garcia -- 5. Beyond a rebarbative commitment to consent / Kathleen Liddell -- 6. The normative status of the requirement to gain an informed consent in clinical trials: comprehension, obligations, and empirical evidence / Angus Dawson -- 7. Is there an obligation to participate in medical research? / Stephen John -- 8. Consenting older adults: research as a virtuous relationship / Julian C. Hughes, Erica Haimes, Lorraine Summerville, Karen Davies, Joanna Collerton, and Thomas B.L. Kirkwood -- 9. Towards supported decision-making in biomedical research with cognitively vulnerable adults / Philip Bielby -- 10. Is consent sufficient? A case study of qualitative research with men with intellectual disabilities / Margaret Ponder, Helen Statham, Nina Hallowell, and Martin Richards -- 11. Consent to genetic testing: a family affair? / Nina Hallowell -- 12. Cultural authority of informed consent: indigenous participation in biobanking and salmon genomics focus groups / Michael Burgess and James Tansey -- Consent and beyond: some conclusions / Kathleen Liddell and Martin Richards -- IndexDate
2011-07-12Identifier
oai:repository.library.georgetown.edu:10822/548461ISBN 978-0-19-923146-1
Oxford/New York: Oxford University Press, 2009. 234 p.
http://hdl.handle.net/10822/548461