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dc.contributor.authorChalmers, Don
dc.date.accessioned2019-09-25T11:59:44Z
dc.date.available2019-09-25T11:59:44Z
dc.date.created2016-02-05 14:01
dc.date.issued2011-07-12
dc.identifieroai:repository.library.georgetown.edu:10822/516039
dc.identifier1940-6029
dc.identifier10.1007/978-1-59745-423-0_1
dc.identifierMethods in molecular biology (Clifton, N.J.) 2011; 675: 1-37
dc.identifierhttp://xr8el9yb8v.search.serialssolutions.com/?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Genetic+research+and+biobanks.&title=Methods+in+molecular+biology&volume=&issue=&date=20110000&au=Chalmers,+Don
dc.identifierhttp://dx.doi.org/10.1007/978-1-59745-423-0_1
dc.identifierhttp://hdl.handle.net/10822/516039
dc.identifier.urihttp://hdl.handle.net/20.500.12424/265807
dc.description.abstractHuman biobanks, and genetic research databases, as referred to by the Organisation for Economic Co-operation and Development (OECD), are essential tools for modern biomedical research. Biobanks may consist in collections created in clinical diagnosis (such as pathology tissue samples in hospitals) or collections created for large-scale longitudinal research (such as the UK Biobank). Human tissue collections are regulated by a patchwork of national laws. However, there is an increasing international uniformity in national privacy laws based on 1980s OECD standards. There are similar uniform standards developing in national research ethics guidelines. As biobanks develop collaborations and linkages, international harmonisation of legislation and human research regulation will be required across jurisdictions. It is essential that international public trust is maintained in biobanking research.
dc.format.mediumArticle
dc.language.isoeng
dc.source336257
dc.subjectBiomedical Research
dc.subjectBiobanks
dc.subjectDatabases
dc.subjectDiagnosis
dc.subjectEthics
dc.subjectGenetic Research
dc.subjectGuidelines
dc.subjectHospitals
dc.subjectLegislation
dc.subjectLaws
dc.subjectPrivacy
dc.subjectRegulation
dc.subjectResearch
dc.subjectResearch Ethics
dc.subjectStandards
dc.subjectTrust
dc.subjectGenetics, Molecular Biology and Microbiology
dc.subjectGenetics and Human Ancestry
dc.subjectInformation Science Ethics
dc.titleGenetic research and biobanks.
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ge.collectioncodeEC
ge.collectioncodeEE
ge.dataimportlabelOAI metadata object
ge.identifier.legacyglobethics:6466219
ge.identifier.permalinkhttps://www.globethics.net/gel/6466219
ge.lastmodificationdate2016-03-21 12:53
ge.submissions0
ge.oai.exportid148650
ge.oai.repositoryid7270
ge.oai.setnameBioethics Research Library
ge.oai.setnameGenEthx: Genetics and Ethics Database
ge.oai.setspeccom_10822_503786
ge.oai.setspeccol_10822_503787
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ge.setnameGlobeEthicsLib
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ge.linkhttp://xr8el9yb8v.search.serialssolutions.com/?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Genetic+research+and+biobanks.&title=Methods+in+molecular+biology&volume=&issue=&date=20110000&au=Chalmers,+Don
ge.linkhttps://dx.doi.org/10.1007/978-1-59745-423-0_1
ge.linkhttp://hdl.handle.net/10822/516039


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