Race and ethnicity in medical research: requirements meet reality
Author(s)Winker, Margaret A.
Genetics and Human Ancestry
Human Experimentation Policy Guidelines / Institutional Review Boards
Journalism / Mass Media Ethics
Research on Special Populations
Health Care for Minorities
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AbstractRace and ethnicity are commonly reported variables in biomedical research, but how they were determined is often not described and the rationale for analyzing them is often not provided. JAMA improved the reporting of these factors by implementing a policy and procedure. However, still lacking are careful consideration of what is actually being measured when race/ethnicity is described, consistent terminology, hypothesis-driven justification for analyzing race/ethnicity, and a consistent and generalizable measurement of socioeconomic status. Furthermore, some studies continue to use race/ethnicity as a proxy for genetics. Research into appropriate measures of race/ethnicity and socioeconomic factors, as well as education of researchers regarding issues of race/ethnicity, is necessary to clarify the meaning of race/ethnicity in the biomedical literature.
Journal of Law, Medicine and Ethics 2006 Fall; 34(3): 520-525
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