Including more than 50'000 documents - as well as 500 doctoral theses - the Health Ethics collection is a unique online resource covering topics related to health ethics such as pharmaceuticals, health economics, health politics, access to medical care, environmental issues and bioethics.

Recent Submissions

  • COVID-19

    Department of Management Studies; Aalto-yliopisto; Aalto University; Häyry, Matti (Cambridge University Press, 2021-06-02)
    Publisher Copyright: © 2020 Cambridge University Press. All rights reserved. Copyright: Copyright 2020 Elsevier B.V., All rights reserved.
  • Consumer health knowledge: cultural norms and marketing of healthcare products

    Oteh, O.U.; Oloveze, A.O.; Obasi, R.O.; Opara, J.O. (Sumy State University, 2021-06-03)
    This paper discourses healthcare products that face some degree of acceptance within some societies due to specific cultural dilemmas and ethical concerns. The purpose of this paper is to assess consumer health knowledge on the cultural and ethical dilemma and norms as they affect the marketing of healthcare products. Literary sources indicate the existence of misconceptions and poor marketing performance of healthcare products within a cultural milieu in Nigeria, thus the focus is on indigenous people and their cultural backgrounds.
  • Palliative Sedierung bei amyotropher Lateralsklerose

    Simon, Alfred Prof. Dr.; Salzmann, Laura (2021-06-03)
  • Fraternidad política y enfermedades raras

    Puyol González, Àngel (2021)
    Rare diseases generally receive less funding for their medical research and treatments than other diseases. Apart from well-known scientific and economic explanations, there are two major ethical positions regarding this fact, the one that approves it for reasons of utilitarian ethics, and the one that condemns it by insisting on egalitarian and individual rights reasons. In this article, I analyse the problems of both types of moral justification, and propose an ethical alternative based on the idea of political fraternity that, applied to rare diseases, avoids the worst consequences of both utilitarianism and the language of individual rights to health and mere egalitarianism.
  • Tribunales de ética médica : naturaleza y garantía del debido proceso

    Díaz Díez, Cristian Andrés; Morales Mora, Laura Manuela (Universidad EAFITMaestría en DerechoEscuela de DerechoMedellín, 2021-06-09)
  • Privacy and Confidentiality Practices In Adolescent Family Planning Care At Federally Qualified Health Centers

    Beeson, Tishra; Mead, Katherine H.; Wood, Susan; Goldberg, Debora Goetz; Shin, Peter; Rosenbaum, Sara (ScholarWorks@CWU, 2016-03-01)
    CONTEXT The confidentiality of family planning services remains a high priority to adolescents, but barriers to implementing confidentiality and privacy practices exist in settings designed for teenagers who are medically underserved, including federally qualified health centers (FQHCs). METHODS A sample of 423 FQHCs surveyed in 2011 provided information on their use of five selected privacy and confidentiality practices, which were examined separately and combined into an index. Regression modeling was used to assess whether various state policies and organizational characteristics were associated with FQHCs’ scores on the index. In-depth case studies of six FQHCs were conducted to provide additional contextual information. RESULTS Among FQHCs reporting on confidentiality, most reported providing written or verbal information regarding adolescents’ rights to confidential care (81%) and limiting access to family planning and medical records to protect adolescents’ confidentiality (84%). Far fewer reported maintaining separate medical records for family planning (10%), using a security block on electronic medical records to prevent disclosures (43%) or using separate contact information for communications regarding family planning services (50%). Index scores were higher among FQHCs that received Title X funding than among those that did not (coefficient, 0.70) and among FQHCs with the largest patient volumes than among those with the smallest caseloads (0.43). Case studies highlighted how a lack of guidelines and providers’ confusion over relevant laws present a challenge in offering confidential care to adolescents. CONCLUSIONS The organizational practices used to ensure adolescent family planning confidentiality in FQHCs are varied across organizations.
  • Ted Hartman oral history interview 1997-06-26

    This interview features Ted Hartman as he discusses the medical field and how it has changed over the time that he was a medical professional. In this interview, Hartman recounts briefly his time spent in service during World War II, then moves on to discuss his medical profession and the Texas Tech Health Sciences Center.
  • H.E. Cone oral history interview 1997-07-16

    This interview features Dr. Hubert Edgar (H.E.) Cone as he discusses his profession in the medical industry. In this interview, Dr. Cone describes how he got into medicine and details some of the medical cases he worked on and how he treated his patients. Dr. Cone then recounts his military service during World War II and closes the interview by recalling working with and believing in his patients.
  • Responding to religious patients: why physicians have no business doing theology

    Greenblum, Jake; Hubbard, Ryan K. (ScholarWorks @ UTRGV, 2019-11-01)
    A survey of the recent literature suggests that physicians should engage religious patients on religious grounds when the patient cites religious considerations for a medical decision. We offer two arguments that physicians ought to avoid engaging patients in this manner. The first is the Public Reason Argument. We explain why physicians are relevantly akin to public officials. This suggests that it is not the physician’s proper role to engage in religious deliberation. This is because the public character of a physician’s role binds him/her to public reason, which precludes the use of religious considerations. The second argument is the Fiduciary Argument. We show that the patient-physician relationship is a fiduciary relationship, which suggests that the patient has the clinical expectation that physicians limit themselves to medical considerations. Since engaging in religious deliberations lies outside this set of considerations, such engagement undermines trust and therefore damages the patient-physician relationship.
  • African American History In Relation to COVID-19 and Other Health Disparities

    Asaolu, Deborah (Iowa State University Digital Repository, 2021-01-01)
    The COVID-19 pandemic has largely affected us as a society, even more so individuals of certain demographic groups. Several factors have been found to contribute to one’s susceptibility for the SARs-CoV-2 virus, including but not limited to age, comorbidities, and occupation. The data also shows that in addition to older individuals, COVID-19 has hit minority communities the hardest, most notably African Americans. The reasons (and solutions) for this are complex and have strong racial and historical components. This paper discusses the intersectionality of African American history with the COVID-19 and other health disparities we see today.
  • Robert Salem oral history interviews 1998

    Dr. Salem, a leading Lubbock surgeon and top administrator a Methodist Hospital, reminisces about his upbringing, his father and his career. He includes an insightful perspective on developments in Lubbock medicine, culminating in the merger of Methodist and St. Mary’s hospitals.
  • Meilaender's "Bioethics: A primer for Christians, 4th ed." (book review)

    Olson, Carl P. (Digital Commons @ George Fox University, 2021-07-01)
  • Day-surgery in pediatric ORL

    Tavani, M.; Picozzi, M. (2001)
  • ”Allt fler falska mediciner mot covid-19 i omlopp”

    Lundin, Susanne; LIU, RUI; Mirsalehi, Talieh; Troein, Margareta (2021-04-17)
    Debatten om covid-19 fokuserar främst på medicinska områden som smittspridning, antikroppar och vacciner. Men det finns andra aspekter som glöms bort.Våren 2020 rapporterade Interpol att stora mängder förfalskade covid-19- skyddsprodukter av olika slag var i omlopp. Nu ett år senare har den globala illegala spridningen ökat. Det gäller allt från undermåliga ansiktsmasker till sådant som utger sig för att vara godkända mediciner och vacciner.Många falska mediciner och skyddsprodukter kan ge allvarliga biverkningar. Andra produkter kan vara helt i avsaknad av aktiva ingredienser och det kan ligga nära till hands att avfärda dem som harmlösa. I själva verket invaggar de oss i en falsk trygghet vilket är allvarligt under den nu pågående pandemin. Vår forskargrupp har länge studerat förekomsten av förfalskade medicinska produkter och vi såg vikten av att samla in data om hur skydd mot covid-19 anskaffas, vem som har tillgång till produkterna och i vilken utsträckning människor riskerar att få förfalskade varor.
  • The Common Rule’s “Reasonable Person” Standard for Informed Consent

    Greenblum, Jake; Hubbard, Ryan K. (ScholarWorks @ UTRGV, 2019-02-01)
    Laura Odwazny and Benjamin Berkman have raised several challenges regarding the new reasonable person standard in the revised Common Rule, which states that informed consent requires potential research subjects be provided with information a reasonable person would want to know to make an informed decision on whether to participate in a study. Our aim is to offer a response to the challenges Odwazny and Berkman raise, which include the need for a reasonable person standard that can be applied consistently across institutional review boards and that does not stigmatize marginal groups. In response, we argue that the standard ought to be based in an ordinary rather than ideal person conception of reasonable person and that the standard ought to employ what we call a liberal constraint: the reasonability standard must be malleable enough such that a wide variety of individuals with different, unique value systems would endorse it. We conclude by suggesting some of the likely consequences our view would have, if adopted.
  • Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

    Freitas, C.; Amorim, M.; Machado, H.; Teles, E. L.; Baptista, M. J.; Renedo, A.; Provoost, V.; Silva, S. (BMJ Publishing, 2021-06-07)
    Introduction International policy imperatives for the public and patient involvement in the governance of health data coexist with conflicting cross-border policies on data sharing. This can challenge the planning and implementation of participatory data governance in healthcare services locally. Engaging with local stakeholders and understanding how their needs, values and preferences for governing health data can be articulated with policies made at the supranational level is crucial. This paper describes a protocol for a project that aims to coproduce a people-centred model for involving patients and the public in decision-making processes about the use and sharing of health data for rare diseases care and research. Methods and analysis This multidisciplinary project draws on an explanatory sequential mixed-methods study. A hospital-based survey with patients, informal carers, health professionals and technical staff recruited at two reference centres for rare diseases in Portugal will be conducted first. The qualitative study will follow consisting of semi-structured interviews and scenario-based workshops with a subsample of the participant groups recruited at baseline. Quantitative data will be analysed using descriptive and inferential statistics. Inductive and deductive approaches will be combined to analyse the qualitative interviews. Data from scenario-based workshops will be iteratively compared using the constant comparison method to identify cross-cutting themes and categories. Ethics and dissemination The Ethics Committee for Health from the University Hospital Centre São João/Faculty of Medicine of University of Porto approved the study protocol (Ref. 99/19). Research findings will be disseminated at academic conferences and science promotion events, and through public meetings involving patient representatives, practitioners, policy-makers and students, a project website and peer-reviewed journal publications.
  • Data Sharing Under the General Data Protection Regulation Time to Harmonize Law and Research Ethics?

    Vlahou, Antonia; Hallinan, Dara; Apweiler, Rolf; Argiles, Angel; Beige, Joachim; Benigni, Ariela; Bischoff, Rainer; Black, Peter C; Boehm, Franziska; Ceraline, Jocelyn (LIPPINCOTT WILLIAMS & WILKINS, 2021-04-01)
    The General Data Protection Regulation (GDPR) became binding law in the European Union Member States in 2018, as a step toward harmonizing personal data protection legislation in the European Union. The Regulation governs almost all types of personal data processing, hence, also, those pertaining to biomedical research. The purpose of this article is to highlight the main practical issues related to data and biological sample sharing that biomedical researchers face regularly, and to specify how these are addressed in the context of GDPR, after consulting with ethics/legal experts. We identify areas in which clarifications of the GDPR are needed, particularly those related to consent requirements by study participants. Amendments should target the following: (1) restricting exceptions based on national laws and increasing harmonization, (2) confirming the concept of broad consent, and (3) defining a roadmap for secondary use of data. These changes will be achieved by acknowledged learned societies in the field taking the lead in preparing a document giving guidance for the optimal interpretation of the GDPR, which will be finalized following a period of commenting by a broad multistakeholder audience. In parallel, promoting engagement and education of the public in the relevant issues (such as different consent types or residual risk for re-identification), on both local/national and international levels, is considered critical for advancement. We hope that this article will open this broad discussion involving all major stakeholders, toward optimizing the GDPR and allowing a harmonized transnational research approach.
  • Ethics in contemporary health care management and medical education

    Balak, Naci; Broekman, Marike L.D.; Mathiesen, Tiit (2020)
  • Ethics in contemporary health care management and medical education

    Balak, Naci; Broekman, Marike L.D.; Mathiesen, Tiit (2020)
  • The Ways in Which Women’s Suffrage Affected Healthcare

    Weber, Madison M (Fisher Digital Publications, 2021-06-04)
    The 19th Amendment had and continues to have a major impact on women’s healthcare in the United States. Prior to suffrage, women had little to no ability to voice their thoughts on and change policies that regarded their own health. This essay addresses the way in which the vote both directly and indirectly impacted healthcare; including workplace conditions, maternal and reproductive rights, racial disparities, political advocacy and healthcare, the different waves of feminism, and how this has all affected modern healthcare for women. From progressive articles being published in women&#39;s magazines, to the establishment of marital rape, to the availability of birth control, it is easy to see the development of the political voice and influence of the American woman. Even today, in the second wave of feminism, women live in the age of Roe V. Wade and awareness of the serious risks of pregnancy and labor. Through this paper, readers will have the opportunity to learn about and understand the importance of suffrage and how it relates to their own health and wellness.

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