Indigenous Peoples and the Morality of the Human Genome Diversity Project
Keywords
AttitudesBlood
Blood Specimen Collection
Community Consent
Cultural Pluralism
Consent
Deception
DNA
DNA Data Banks
Drug Industry
Data Banks
Discrimination
Ethics
Financial Support
Genetic Diversity
Genetic Materials
Genetic Predisposition
Genetic Research
Genetics
Genome
Genome Mapping
Government
Government Financing
Human Genome
Human Genome Diversity Project
Human Genome Project
Industry
Informed Consent
International Aspects
Investigator Subject Relationship
Investigators
Justice
Minority Groups
Moral Obligations
Moral Policy
Morality
Property Rights
Property
Research
Research Ethics
Rights
Risks and Benefits
Social Discrimination
Specimen Collection
Tissue Donation
Values
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http://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Indigenous+Peoples+and+the+Morality+of+the+Human+Genome+Diversity+project&title=Journal+of+Medical+Ethics.++&volume=25&issue=2&pages=204-208&date=1999&au=Dodson,+Michaelhttps://dx.doi.org/10.1136/jme.25.2.204
http://hdl.handle.net/10822/754714
Abstract
In addition to the aim of mapping and sequencing one human's genome, the Human Genome Project also intends to characterise the genetic diversity of the world's peoples. The Human Genome Diversity Project raises political, economic and ethical issues. These intersect clearly when the genomes under study are those of indigenous peoples who are already subject to serious economic, legal and/or social disadvantage and discrimination. The fact that some individuals associated with the project have made dismissive comments about indigenous peoples has confused rather than illuminated the deeper issues involved, as well as causing much antagonism among indigenous peoples. There are more serious ethical issues raised by the project for all geneticists, including those who are sympathetic to the problems of indigenous peoples. With particular attention to the history and attitudes of Australian indigenous peoples, we argue that the Human Genome Diversity Project can only proceed if those who further its objectives simultaneously: respect the cultural beliefs of indigenous peoples; publicly support the efforts of indigenous peoples to achieve respect and equality; express respect by a rigorous understanding of the meaning of equitable negotiation of consent, and ensure that both immediate and long term economic benefits from the research flow back to the groups taking part.Date
2015-05-05Identifier
oai:repository.library.georgetown.edu:10822/75471410.1136/jme.25.2.204
Journal of Medical Ethics. 1999 Apr; 25(2): 204-208.
0306-6800
http://worldcatlibraries.org/registry/gateway?version=1.0&url_ver=Z39.88-2004&rft_val_fmt=info:ofi/fmt:kev:mtx:journal&atitle=Indigenous+Peoples+and+the+Morality+of+the+Human+Genome+Diversity+project&title=Journal+of+Medical+Ethics.++&volume=25&issue=2&pages=204-208&date=1999&au=Dodson,+Michael
http://dx.doi.org/10.1136/jme.25.2.204
http://hdl.handle.net/10822/754714
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