Blood representations associated to chronic transfused patients: Symbolic interpretationsand ethical perspectives
Contributor(s)Laboratoire d'éthique médicale ; Université Paris Descartes - Paris 5 (UPD5) - Université Sorbonne Paris Cité (USPC)
Département d’immunologie plaquettaire [INTS-Paris] ; Institut National de la Transfusion Sanguine [Paris] (INTS)
Département de Médecine Interne et Gériatrie [AP-HP Henri-Mondor–Albert-Chenevier] ; Unité de soins palliatifs [AP-HP Henri-Mondor–Albert-Chenevier] ; Hôpitaux Universitaires Henri-Mondor - Hôpitaux Universitaires Henri-Mondor
Samu du Nord–pôle de l’urgence [Lille] ; Centre Hospitalier Régional Universitaire [Lille] (CHRU Lille)
Éthique Keywords: Blood transfusion
Blood symbolic representations
Produits sanguins labiles
Représentation symbolique du sang
Labile blood products
[SDV.ETH] Life Sciences [q-bio]/Ethics
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Abstract Since the beginning of the 20th century, major technological developments have been made in blood transfusion. Although numerous sociological studies have been conducted on donors, few have highlighted transfused patients, and in this case, the attention has almost exclusively been focused on transfusion risks in patients. Conversely, blood representations associated with the chronically transfused patients have not really been explored in the literature. Based on interviews conducted among chronically transfused patients (patients with hemoglobinopathy, malignant hemopathy or cancer), this present study enables to understand their needs and their expectations through their symbolic representations and their interpretations of blood transfusion, raising tensions as well ethical perspectives.
Depuis le début du XX e siècle, des progrès technologiques ont été réalisés en transfusion sanguine. De nombreuses études sociologiques ont été menées chez les donneurs ; cependant, les receveurs de produits sanguins labiles n'ont été que peu étudiés. En effet, toute l'attention s'est portée sur l'étude des risques transfusionnels s'y afférant alors même que les représentations du sang chez les receveurs chroniques de produits sanguins labiles n'ont quasiment pas été explorées dans la littérature. Grâce au recueil de paroles de patients transfusés de façon chronique (patients atteints d'hémoglobinopathies, d'hémopathies malignes ou d'un cancer), ce travail a permis de pouvoir comprendre les besoins et les attentes de ceux-ci au travers de leurs représentations et des interprétations symboliques qu'ils se font de la transfusion sanguine tout en soulevant également des tensions et des enjeux éthiques.
DOI : 10.1016/j.tracli.2016.06.008
PUBMED : 27424283
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